New guide launched for family carers to better understand NHS Continuing Health Care
Release Date: 22 June 2012
Source: Mental Health Foundation
Country: United Kingdom
The booklet provides practical information about what exactly NHS Continuing Healthcare is, how people are assessed for it and how decisions are made. It also includes details about what happens if a person is eligible or not for NHS CHC as well as some advice about how to get help and useful contacts to get more information. The questions addressed arose from families’ experiences. Drawing on the Foundation’s extensive work on access to health care for people with learning disabilities, the booklet was funded by Department of Health’s Valuing People Now programme.
Alison Giraud-Saunders, Consultant at the Foundation for People with Learning Disabilities, says:
“People with learning disabilities who have very complex health needs face unique challenges in their care. Our research has shown there is a real need for targeted information. The big priority for families is of course to get the right support for their relatives. It shouldn't matter where the money comes from. But different sources of funding come with different rules and it's really important for families to understand what these may mean.
The rules around NHS CHC are complex and the NHS staff responsible for CHC funding aren't always well informed about people with learning disabilities or personalised support. So it's even more important for families to know what's possible, what questions to ask and what to look out for.
This new resource has been specifically designed with carers to provide real, practical help to family carers of people with learning disabilities to make a significant difference to their experiences of the NHS.”
Jo Fitzgerald, family carer and lead of the peer support network for people using personal health budgets (www.peoplehub.org.uk). says:
“The rules about continuing care funding are complicated and families need to understand the implications. It's no exaggeration to say that this booklet is desperately needed."
The booklet will be available here.